Tuesday, July 12, 2011

Mr. Jones

Ocean Beach, California 5/2011
Jonah has been very verbal the last 5 days, which has been extremely exciting. He is demonstrating a level of expression that I have never been able to experience with him, at least not for a consistent length of time. In the past, his strength of language would vary day by day, one day being strong, the next 10 days extremely garbled and only speaking with prompting, and another strong day, back to difficult again, and so on, and so on. In the last 5 days, he has been singing more songs, and demonstrating age appropriate pretend play. The majority of his speech is clearer, and the words and phrases he is confident with are coming out of his mouth crystal clear. This morning, when I was dropping him off at his summer camp, he held up his pug puppy beanie baby to the water fountain in front of the school and said "Puppy, Look at the waterfall." I couldn't believe it!



It is sometimes scary to think about how different Jonah might be if he weren't autistic. It's hard to describe how unique and amazing his personality is (as said by every mother). He has a very special innocence that has been preserved. I believe that when the autism took over around the age of 2, his mental/psychological development was stunted, leaving him with an immature mode of expression. He is now maturing and expressing himself similarly to a 3-4 year old.  His pronunciation is difficult to understand, but inappropriate behaviors and tantrums have diminished almost completely. He has always been very cuddly and affectionate, and is always giggling over something.

Jonah has made tremendous advancements over the last year, most significantly in the last 6 months which has been one of the major motivators for seeking out a homeopathic therapy for him. I drastically changed our diets at the end of last year, and noticed a significant improvement in his development and overall demeanor in a very short period of time. It was at this point that I came to the realization that something unnatural had occurred in my child's body, and if I could recognize such a dramatic change in him just by improving his nutritional intake, then restoring a natural balance in him might further relieve some of his autistic expressions.  

With Jonah, there are times when the autistic expressions are very prominent, and times when he seems like a completely normal little boy. This is why he received the PDD-NOS diagnosis versus the ASD diagnosis. It has been a puzzle in our family, because there are times when he does not fit into any of the categories associated with ASD. During the first year after his diagnosis, I was hoping that this would be something he would just grow out of. It was so difficult to tell when he was at such a young age what could be deemed as a significant developmental delay. I second guessed the diagnosis for awhile, and researched various disorders, hoping one might have the answers we were looking for. 


We have not started the CEASE Therapy yet, but I'm hoping to begin next month (August). I want to make sure that I am starting the therapy when it will be right for Jonah, so that it does not disrupt too much of his routine. In some ways perhaps it is better that I am taking the time to thoroughly investigate and prepare his medical history and my medical history, so we have as much information as possible when we start the therapy. I was talking to a friend today about it, and I had the same hope and realization that I confidently feel every time I talk about it: That within the next few years, Jonah will be a completely different child.



Monday, July 11, 2011

How did we get here?

While this blog is about a mission to recover my son from Autism, it is also a blog that seeks overall change and reform for the sake of the human condition.  To begin this mission of realization, one must first embrace that everything is connected. 
I am a huge advocate for SUSTAINABILITY. SUSTAINABILITY is a word I speak of or think about at least 20 times a day; or rather, I speak of and think about how UNSUSTAINABLE the human condition has become at least 20 times a day. Our economy is UNSUSTAINABLE, our environment is UNSUSTAINABLE, our agricultural system is UNSUSTAINABLE, our, food is UNSUSTAINABLE, our education system is UNSUSTAINABLE, our health care is UNSUSTAINABLE, which makes human kind UNSUSTAINABLE. 
The biggest issues I hope to help inform you readers on are health, food, agriculture, and education. These are the things that have directly affected me as a mother. I ask myself these questions daily: “How can I get this message across? How can I make a difference? How can I prevent this from happening to other children? How can I prevent this from happening to other families?”
You must realize that Jonah’s autism does not only have an impact on him. Jonah doesn’t know how to be anything else. Myself, on the other hand, now that is a different story. My experience as a parent has been nothing like anything I imagined. The same could be said for everyone who knows and loves my son, as his condition does often present some challenges. While I accept my son and his condition, it is hard for me not to feel guilt and not to feel remorse. I was guilty of lacking in education. I did not know what has been happening in agriculture. I did not know what has been happening to our food. I did not know what has been happening in our health care system. I sometimes feel like I was robbed of my child, but I have no one to blame but myself for not educating myself further. 
I believe that Jonah’s autism is directly associated with intoxication from vaccinations.  I believe that he was more inclined to the development of his autism based on his genetic disorder. There is a possibility that he may have developed autism had I denied vaccinations (which I seriously contemplated prior to his birth) based on other environmental contaminants. At the time of his birth, I was informed by the pediatrician that there has been no medical evidence to support that vaccinations are causing autism, and any speculation associated with that theory suggested that mercury in the vaccines would be the responsible chemical. This was in 2005, and Dr. Andrew Wakefield who suggested that the mercury in the MMR vaccine was responsible for autism has since been discredited and banned from practicing medicine.  
So, Jonah received his vaccines, as I was instructed was the best thing I could do for him. At day 2, Jonah received his first vaccine, prior to coming home from the hospital. This vaccine was a Hepatitis B injection. The following are the precautions for the vaccine, that are not openly disclosed prior to administering the injection, as found at http://www.medicinenet.com/hepatitis_b_vaccine-injection/page3.htm :
PRECAUTIONS: Before getting hepatitis B vaccine, tell your doctor or pharmacist if you are allergic to it; or to yeast; or other vaccines; or if you have any other allergies. Some vials and prefilled syringes may use latex rubber stoppers or plungers. Tell your doctor if you are allergic to latex. This product may contain inactive ingredients, which can cause allergic reactions or other problems. Talk to your pharmacist for more details. Before using this medication, tell your doctor or pharmacist your medical history, especially of: bleeding problems (such as hemophilia, low platelets, anticoagulant treatment), current illness with fever. If you are a hemodialysis patient, you may not respond as well to the vaccine and will need to have hepatitis B antibody levels checked yearly. If antibodies drop too low over time, you may be given another dose of vaccine (often called a booster shot).If you have decreased immune function from other medications (see also Drug Interactions) or other illness (such as HIV, leukemia, lymphoma, other cancer), your body may not make enough antibodies to protect you from hepatitis B infection. Antibody levels may be checked after the vaccine series. The elderly may not make as many antibodies to the vaccine. Talk to your doctor for more details. During pregnancy, this medication should be used only when clearly needed. Discuss the risks and benefits with your doctor. It is unknown whether this drug passes into breast milk. Consult your doctor before breast-feeding.
Does this sound like something you would willingly put in to your child’s blood stream? How are we supposed to know at the ripe old age of 48 hours if the child is allergic to latex, or if they have a medical history of bleeding, or if they are allergic to yeast and other vaccines? I would especially like to highlight for you the text that reads “During pregnancy, this medication should be used only when clearly needed. Discuss the risks and benefits with your doctor. It is unknown whether this drug passes into breast milk. Consult your doctor before breast-feeding.”  So... It may be unsafe to the fetus during gestation and unsafe if passed through breast milk, but okay to administer directly into the body of a newborn baby? 
There are, in fact, 11 vaccines administered to the average child in the first 24 months of life. I will be all to happy to inform you of the precautions for each vaccine in preparation to start CEASE Therapy. In order to understand CEASE Therapy and how it is working for children with autism, you must understand what we are up against. It is my mission to recover Jonah from his autism. It is my mission to help other families recover their children from autism, and to prevent this diagnosis for other children. I hope you are reading.